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After losing his partner to t.b. In feb, Tumassi Anauta has suit a bingle parent to his triplet children.Â
Anauta and his partner were diagnosed with latent TB last year, which can remain in the body for years and later turn into an active case.Â
While treatment is relatively straightforward today, usually taking antibiotics over several months, the disease can still turn deadly if left unmanaged.Â
âWe werenât taking it seriously,â says Anauta. ÂWe were like, âWeâre not even sickâ.â
Now the 25-year-old is urging fellow Nunavimmiut to be more careful with their health.Â
âI gotta tell my people that please take the TB pills, cause you donât know who you might lose.â
In early June, there were about 20 active cases of tuberculosis in Anautaâs home community of Akulivik.Â
âItâs way too many,â says Jenifer Moisan, the assistant head nurse at Akulivikâs local community service centre. Since arriving in 2022, she says sheâs never seen so many cases.Â
That echoes the reality in the rest of the region: Alukivik is one of eight communities across Nunavik currently dealing with a growing tuberculosis outbreak.Â
The total number of cases has grown annually for the past five years. Last year, health workers detected 116 cases â a new record high. With 60 cases already discovered so far this year, things arenât looking any better.Â
In late May, the Nunavik Regional Board of Health and Social Services (NRBHSS)Â sent a team to Alukivik to screen community members in an attempt to slow the spread of the disease.Â
Health workers are going door-to-door and to various workplaces to give residents the opportunity to do a sputum test, used to determine whether someone has the bacteria that causes the disease.Â
Those efforts have had mixed results, Moisan says.Â
âThere are many concerns and conflicting information,â she said.Â
In Québec, people with active TB are legally required to undergo treatment.Â
That mandatory treatment plus a mistrust in the health-care system creates fear in residents, says Moisan.Â
âPeople are scared to be arrested and then forced to be treated,â she says.Â
Larry Hubert, the communityâs mayor, says the system needs to better integrate Inuit way of life into treatment to try and regain residentsâ trust.Â
With the field team only in the community for a month, the mayor says the response also has to be more sustained.Â
âIt has to be a community-based initiative and an ongoing initiative, because when theyâre gone, it spreads again,â he says.Â
The NRBHSS says itâs trying to hire local workers to help support the response, but that itâs struggling to do so in each community.Â
In the 1950s and 60s, Inuit with TB were uprooted from their communities and sent for treatment down south, with many never returning home.Â
Elisapi Aliqu remembers her mother being sent to Hamilton, Ont., for treatment. While her mother eventually returned, having her gone for so long left a lasting impression.Â
âShe was there for two whole years, not even able to get up off the bed,â says Aliqu. ÂThey had a lot of patients back then. There was no communication, no telephone.â
Today, limited resources in most small communities mean residents sometimes still need to leave their homes and travel to health centres in either Puvirnituq or Kuujjuaq for lung X-rays.Â
Natasha Ita MacDonald, an Inuk researcher, says that reality remains a major hurdle in managing the tuberculosis crisis.Â
âWhen Inuit are forced to leave their own home, some mothers with infants or parents that need to leave their jobs, [...] itâs unacceptable and I can understand why there can be such a distrust of the system.â
Ita MacDonald recently coauthored a study which called for more resources close to home.Â
âThe value of Inuit lives are still treated as less than that of non-Inuit or non-Indigenous, and that has to stop,â she says.Â
The threat of police action if not following treatment also contributes to that mistrust, she adds.Â
The current living conditions in Nunavik are also a major factor in the rise of tuberculosis cases, says Dr. Marie-Jo Ouimet, the regionâs director of public health.Â
âIf we invested in better infrastructure, more housing to avoid overcrowding, if we could curb food insecurity, and poverty, we wouldnât be faced with this crisis,â she says.Â
On the medical side, a lack of clinic spaces in communities, limited screening capacity, and staff shortages are all hindering the teams on the ground, she adds.Â
For Jennifer Munick-Watkins, NRBHSSâs executive director, it comes down to a lack of support from the Quebec government.Â
Sheâd like to see a budget carved out at the provincial level to better address tuberculosis in the region.Â
âI feel like they donât care,â she says. ÂAre we not worthy of being helped more? ... Itâs sort of hard to be kind in a devastating situation.âÂ
The provinceâs Department of Health and Social Services said in an email that itâs taking the crisis seriously. It adds it has not dedicated a budget to fight the disease, but says the funding agreement between the department and the NRBHSS is currently being renegotiated.Â
Munick-Watckins says she hopes those discussions will lead to the âsame servicesâ being available in Nunavik as they are in the rest of the province.Â
âI just want equality. Thatâs all I want, nothing more, nothing less.â
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